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Health Care Resources


Individuals with special health care needs are those who have or are at increased risk for a disease, defect or medical condition that may hinder the achievement of normal physical growth and development and who also require health and related services of a type or amount beyond that required by individuals generally.
It is estimated that 18 million children in the United States have special health needs and an estimated 5.3 million Americans, a little more than 2% of the U.S. population, currently live with disabilities resulting from traumatic brain injury.

 

Articles/Information:
Accessing School Health Information
Advocacy Guide IHSS Share of Cost
Airline Flights for Patients Traveling for Medical Reasons
Dental Care for Your Baby - frequently asked questions

Facts for Parents About Vaccine Safety

Families Partnering with Providers
Family Guide to Systems of Care for Children with Mental Health Needs
Free Photographs for critically ill child at home or in NICU
Guide to California Health Programs

Gynecological Exams for Women with Disabilities
Health & Safety for Californians with Developmental Disabilities 
Health Care Access & Utilization, 2008
Health Care Transition Information and Resource Guide
Hospital Discharge Questions for Families of Children with Special Health Care Needs
How to Compare Health Plans

How to Help a Child who Stutters
How to Do Well When Visiting The Sick

Kids Healthy Eating Calculator

Medi-Cal Flow Chart

Medication Assistance Directory

Moving from Pediatric to Adult Health Care

Parents Questions About Childrens Vaccinations

Providing Support/Friendship to People with mental illnesses
Quick Guide to Healthy Living
Stop the Spread of the Flu

Talking to Children About the Flu (H1N1)

Talking with Your Doctor and Other Healthcare Professionals
Vaccines: What Every Parent Should Know

 

Websites:

American Academy of Pediatrics

Ask a Specialist about Your Child

BabyCal
Cancer Care Navigator
California Childcare Health Program
California Institute for Mental Health

Consumer Center for Health Education and Advocacy
Consumer Health Advocacy Project
DeafDoc 
Faces and Voices of Recovery
Families USA

First 5 San Diego

Family Voices of California

Free Meds and Solutions
Friends Health Connection
Gift From Within

Health Care Coach
Health Policy Watch
Healthy and Ready to Work National Center
Healthy Children
Healthy Families

In Home Supportive Services 

Interactive Autism Network
National Survey of Children's Health
National Institute of Child Health & Human Development
Office of the Patient Advocate (California)
Together We Grow


Forms/Toolkits/Organization:

Build Your Own Care Notebook

Build your own Special Care Organizational Record

Emergency Health Care Form for Children with Special Needs

Health Plan Checklist

It's Time To Transition! (pediatric to adult health care)

My Health Form 
My Health Plan 

My PKU Toolkit 

The Care Notebook

This Is Health Care Transition (video-youth to adult health care)

20 Steps To Help Ensure The Best Health Care for Your Child

EFRC Online Resources:
Community Health Programs 
Health Education & Wellness
Mental Health

San Diego Flu Information Website
Fall 2009 Seasonal Flu Vaccinations by Sharp Healthcare
H1N1 and Children with Special Health Care Needs



Would you like to receive information about upcoming events/trainings related to special health care needs?

Exceptional Family Resource Center does not promote or recommend any
therapy, treatment, institution, etc. and does not espouse any particular political,
educational or religious views. Inclusion of information or resources does not
necessarily imply promotion or recommendation by EFRC.
The health and medical information on this page is provided for informational
purposes only. Please contact your health care provider with any
questions or concerns that you may have.


Exceptional Family Resource Center
9245 Sky Park Court, Suite 130 - San Diego CA 92123