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Health Care Resources

Individuals with special health care needs are those who have or are at increased risk for a disease, defect or medical condition that may hinder the achievement of normal physical growth and development and who also require health and related services of a type or amount beyond that required by individuals generally. It is estimated that 18 million children in the United States have special health needs and an estimated 5.3 million Americans, a little more than 2% of the U.S. population, currently live with disabilities resulting from traumatic brain injury.

Articles/Information:

Accessing School Health Information
Access to Medical Care for Individuals with Mobility Disabilities
Advocacy Guide IHSS Share of Cost
Airline Flights for Patients Traveling for Medical Reasons
Dental Care for Your Baby - frequently asked questions
Facts for Parents About Vaccine Safety
Families Partnering with Providers
Family Guide to Systems of Care for Children with Mental Health Needs
Fetal Alcohol Disorders Prevention
Free Photographs for critically ill child at home or in NICU
Guide to California Health Programs
Gynecological Exams for Women with Disabilities
Health & Safety for Californians with Developmental Disabilities 
Health Care Access & Utilization, 2008
Health Care Transition Information and Resource Guide
Hospital Discharge Questions for Families of Children with Special Health Care Needs
How to Compare Health Plans
How to Help a Child who Stutters
How to Do Well When Visiting The Sick
Kids Healthy Eating Calculator
Medi -Cal Flow Chart
Medication Assistance Directory
Moving from Pediatric to Adult Health Care
North San Diego County Dental Roadmap
Out-of-Home Respite Services Clarification 

Websites:

American Academy of Pediatrics
Ask a Specialist about Your Child
BabyCal
CancerCare Navigator
California Childcare Health Program
California Institute for Mental Health
Consumer Center for Health Education and Advocacy
Consumer Health Advocacy Project
DeafDoc
Faces and Voices of Recovery
Families USA
First 5 San Diego
Family Voices of California
Free Meds and Solutions
Friends Health Connection
Gift From Within
Health Care Coach  
Healthy Children 
Health Policy Watch
Healthy and Ready to Work National Center
Healthy Families
In Home Supportive Services
Interactive Autism Network
Medicare Caregiver Information 
National Survey of Children's Health
National Institute of Child Health & Human Development 
New US Government Health Care website 
Office of the Patient Advocate (California)
Starbright World
Together We Grow

Forms/Toolkits/Organization:

Build Your Own Care Notebook
Build your own Special Care Organizational Record
Emergency Health Care Form for Children with Special Needs
Health Plan Checklist
It's Time To Transition! (pediatric to adult health care)
Medical Home Toolkit For Families
My Health Form
My Health Plan
My Medical Appointment
My PKU Toolkit
The Care Notebook
This Is Health Care Transition (video-youth to adult health care)
20 Steps To Help Ensure The Best Health Care for Your Child

EFRC Online Resources:

Community Health Resources 
Health Education & Wellness
Mental Health

FLU  RESOURCES:
Stop the Spread of the Flu
H1N1 and Children with Special Health Care Needs
Talking to Children About the Flu (H1N1)
San Diego Flu Information Website