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Health Care Resources

Individuals with special health care needs are those who have or are at increased risk for a disease, defect or medical condition that may hinder the achievement of normal physical growth and development and who also require health and related services of a type or amount beyond that required by individuals generally. It is estimated that 18 million children in the United States have special health needs and an estimated 5.3 million Americans, a little more than 2% of the U.S. population, currently live with disabilities resulting from traumatic brain injury.

The California Department of Managed Health Care (DMHC) launched a new secure, easy-to-use online form to allow Californians to file complaints regarding their health plan more quickly and easily from any computer. The new online form is available in both English and Spanish and enables consumers to request an external review of a health plan's denial of a medical service or treatment. This external review is known as an Independent Medical Review. Previously, health plan enrollees had to submit the required forms and paperwork via mail or fax.  There are also online videos explaining their services and the independent medical review process.

Articles/Information:

Accessing School Health Information
Access to Medical Care for Individuals with Mobility Disabilities
Advocacy Guide IHSS Share of Cost

Affordable Care Act and Children
Airline Flights for Patients Traveling for Medical Reasons
Better Health Care Communication
California Childrens Services 
Children’s Mental Health Services Resource Manual  
Comparing Health Plans’ Benefits and Coverage Summaries
Connecting California Kids with Health Insurance
Dental Care for Your Baby - frequently asked questions   
Dependent Care Tax Credit   
Facts for Parents About Vaccine Safety
Families Partnering with Providers
Family Guide to Systems of Care for Children with Mental Health Needs
Fetal Alcohol Disorders Prevention  
Free Discount Prescription Card 
Guide to California Health Programs
  
Health & Safety for Californians with Developmental Disabilities 
    
Health Information Technology for Families 
Health Information Technology for Professionals 

Healthy Relationships, Sexuality and Disability Resource Guide 2013

Healthy Smiles for Children with Down syndrome 
Hospital Discharge for Families of Children with Special Health Care Needs
How to Compare Health Plans
How to Help a Child who Stutters
How to Do Well When Visiting The Sick  
How to Manage Your Home Care Provider (for IHSS consumers) 
Insurance Help for Autism
iPads and Programmable Shunts
Kids Healthy Eating Calculator 
Local Dental Providers for Children with Special Needs 
Managing a Medically Complex Child
Medical Care Access for Individuals with Mobility Disabilities
Medication Assistance Directory
North San Diego County Dental Roadmap
Oral Health Resources
Overview of California Waiver & Non-Waiver Programs

Out-of-Home Respite Services Clarification 
Preventing Secondary Conditions for People with Mobility Impairments 
Parents’ Questions About Children's Vaccinations   
Professional Counseling (offered free by USC Telehealth)
Providing Support/Friendship to People with mental illnesses 
Public Health Benefits Access Guide 
Questions You Should Ask Your Insurance Provider
Quick Guide to Healthy Living 
Sexuality and Disabilities 
Talking with your Doctor about your Child
Talking with Your Doctor and Other Healthcare Professionals 
The Family Experience with Primary Care Physicians and Staff 
Therapeutic Behavioral Services for Youth
 
Utilities Medical Baseline Allowance for Disabled  Persons
   
What Families Want from Primary Care Providers
 

Websites:

Affordable Care Act
American Academy of Pediatrics
Anderson Center for Dental Care
Ask a Specialist about Your Child 
Autism Health Insurance Project
Bright Futures Newsletter (special health needs)
CancerCare Navigator

California Childcare Health Program  
California Children’s Health Coverage Coalition

California Health Incentives Improvement Program
California Institute for Mental Health
California Medicaid Facts for Kids
Centers for Disease Control and Prevention Resources
Covered California Health Coverage
DeafDoc
Faces and Voices of Recovery
Families USA
First 5 San Diego
Family Caregiver Alliance
Family Voices of California
Free Meds and Solutions
Friends Health Connection
Gift From Within
Health Care Coach  
HealthCare.Gov
Healthy Children 
Health Consumer Alliance
Healthy and Ready to Work National Center
Healthy Families
Healthy Transitions  
HMO Help Center 
In Home Supportive Services
Interactive Autism Network
Local Dental Providers for Children with Special Needs
Medicare Caregiver Resources
National Institute of Child Health & Human Development 
Office of the Patient Advocate (California)
Sight for Students
Starbright World
Together We Grow 
Undiagnosed Conditions and Syndromes

Forms/Toolkits/Organizations:

Build Your Own Care Notebook
Special Care Organizational Record (military)
Emergency Health Care Form for Children with Special Needs
Family Care Navigator  
Kid Care Express Mobile Medical Unit
Medical Home Toolkit For Families
My Health Form
My Health Plan
My Medical Appointment
My PKU Toolkit
The Care Notebook
This Is Health Care Transition (video-youth to adult health care)


FLU  RESOURCES:
Stop the Spread of the Flu
The Flu and Children with Special Health Care Needs
Talking to Children About the Flu
San Diego Immunization Website
 

 

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