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Research Studies

Autism Spectrum Disorders:

SDSU Brain Development Imaging Lab (sci.sdsu.edu/bdil) is looking for children and adolescents between ages 7 and 17, diagnosed or suspected of having a diagnosis of ASD, to take part in our cutting-edge brain research studies.  Please visit website for details. Contact Dr. InnaFishman at ifishman@mail.sdsu.edu or 619.594.2299.

Neurofeedback study - The University of California San Diego is seeking participants for their research study.Children should be 6-17 years old, high functioning (with a confirmed diagnosis of autistic disorder), right-handed and have normal vision and hearing. Children with no previous neurofeedback experience preferred. Participants will undergo pre- and post training assessments with sixteen 45 min neurofeedback sessions over a 1-2 month period. Children will play engaging video games while brain, muscle activity, heart rate, skin conductance and respiration are recorded. The placement of the sensors is non-invasive. Each participant will receive $100 following completion of the study. Contact Dr. Elisabeth Friedrich at 858- 534-7342 or efriedrich@ucsd.edu.

The Program for the Education and Enrichment of Relationship Skills (PEERS) is a social skills group for teens with ASD and they are seeking participants. This free 14-week evidence-based social skills intervention provides the tools for building and maintaining positive friendships. This program is part of a Research Study and is made available to you by the SDSU Autism Program in collaboration with the Autism Discovery Institute and the National Foundation for Autism Research (NFAR). Contact Dr. Bonnie Kraemer at bkraemer@mail.sdsu.edu or 619-594-3492. view flyer

The Caltech Autism and Asperger Syndrome Research Program studies the cognitive and emotional aspects of adults with Autism Spectrum Disorder (ASD). Scheduling and arrangements are handled on an individual basis. Compensation for time and travel expenses. Contact radolphs@hss.caltech.edu or (626)395-4486.

Autism & Family Study - Participants are needed for a CSU San Marcos study is examining the caregiving duties that adolescent’s provide to a younger male sibling with autism how these duties and social support might affect behaviors. This study aims to shed light upon the caregiving roles adolescents provide in families where a child has autism. View flyer. Contact Sara Brejnak at conne013@cougars.csusm.edu

SDSU Autism Transition Study - seeking to intervie families of youth with ASD around issues of transition from school to adult life, especially those who are culturally & linguistically diverse. Child must be between ages of 16 and 25 years. Contact Bonnie Kraemer, Ph.D. at 619.594.3492 or bkraemer@mail.sdsu.edu.

Seeking participants for a Walden University research study on the Impact of Community Resources on Functioning of Families Raising a Child with Autism. Families must have a child between the ages of 3 and 5 with autism. View details or contact Rachel Yasumatsu at rachel.yasumatsu@waldenu.edu.

University of California Irvine is seeking volunteers to participate in the study of a potential effective treatment for autism using mild forms of sensory stimulation. Eligible subjects must be between 3-6 years of age and have a diagnosis of autism and must be able to schedule 4 visits (1-2hours) at UC Irvine over the course of 6 months. The testing of your child and investigational treatment will be given at no cost to you and $100 compensation given upon completion. Contact Michael Leon, Professor of Neurobiology and Behavior at UC Irvine at 949-824-5343.

UC Irvine Dept. of Psychology and Social Behavior is seeking mothers with infants younger than 9 months for their research study evaluating a training program for mothers designed to help the early detection of autism.  Participants need to have another child with an Autism Spectrum Disorder -OR- have NO family history of any developmental disorders. Participation involves a developmental assessment, training program or safety video, and questionnaires during a 1.5 hour study visit at home or at the university’s family lab, and two online or mailed questionnaires. All participants will receive a $20 gift card. Contact  Kara at kthorsen@uci.edu or 1-949-607-8824.
 
The Autism Research Lab in the Psychology Department at CSU Northridge is conducting an online research survey for families of children with Autism Spectrum Disorders. The anonymous survey takes approximately 20 minutes to complete, and results will help advance knowledge of services families receive and characteristics of those families. Questions? Contact Amanda Finch or Dr. Debra Berry Malmberg at autismSCstudy@gmail.com.

Seeking participants for Autism survey - A doctoral student in the Department of Educational Psychology at Texas A&M University is conducting a short online survey examining the factors that influence parents to treat their children with an autism spectrum disorder with complementary and alternative treatments. The purpose of the study is to gain information about why parents choose these treatments, and factors that influence their decisions. View survey or contact Sarah at chi2blubug@tamu.edu.

Autism Spectrum Disorder - Researchers at Cal State University Northridge, in collaboration with Brenda Miranda and Dr. Debra Malmberg, are currently recruiting parents and caregivers of individuals with ASD (ages 2-18) for a study on family experiences with ritualistic and repetitive behavior. The study seeks to better understand the challenges of family life when a child with autism displays some of these behaviors, with the goal of developing effective intervention support.
This study involves completing an online survey that takes approximately 15-20 minutes.  https://www.psychsurveys.org/csun/autism. Contact Brenda at bren.miranda@gmail.com

Autism Study - The Early Autism Risk Longitudinal Investigation is a ground-breaking study looking at possible environmental and genetic links to autism. The study is currently recruiting mothers of a child with autism spectrum disorder and who are 20 weeks pregnant or less or may become pregnant. It is being conducted in Northern California at Kaiser Permanente, Northern California at UC Davis and the M.I.N.D. Institute. Families will receive free autism assessments from clinical experts, including developmental assessments of your new baby from 6 months until 3 years of age; compensation for their time: $545.00 to $605.00 if the entire study is completed from early pregnancy until your newborn child is 3 years old and a new diaper bag and gifts for their baby. Call1-866-550-5027 or email EARLI@phs.ucdavis.edu.

Autism study - Seeking pregnant women or women planning on becoming pregnant. In this study the babies will be followed for 3 years. MARBLES Study (Markers of Autism Risk in Babies Learning Early Signs). 866-550-5027. View Details

Autism/Gluten-free-casein-free (GFCF) Diet Study - children 4-10 years. Contact Jennifer at jgourdin@projects.sdsu.edu or 619-764-6014.

ASD Study -  Interview parents about counseling/mental health services for their children. Child and Adolescent Services Research Center. Contact Robin Taylor at 858-966-7703 x3626 or email rtaylor@ucsd.eduView flyer.

Autism Studies by the Center for Autism Research - Contact Dr. Cindy Carter at 858-454-7239 or ccarter@brain.ucsd.edu or Cindy Hsu at 858-551-7925 x239 or cindyhsu@brain.ucsd.edu..

ASD, Developmental Delay or Typically Developing MRI Study - children between 12 and 41 months AND Infant Siblings of children with ASD. http://autism.ucsd.edu

High functioning Autism/Asperger's Study - Males typically developing 15-48 years. Center for Autism Research and the Center for Functional MRI at UCSD.

Autism Spectrum Disorders - Word Processing Study in children 4-8 years. Contact Joe at 858-534-6144 or jmccleery@psy.ucsd.edu. http://psy.ucsd.edu/autism

Autism and Language-Learning Disorders - Infants 3-10months old. Contact Joe at 858-822-0541 or jmccleery@psy.ucsd.edu

Autism Spectrum Disorder - Children ages 7-17 with IQ over 80.Neurofeedback therapy study at the Cognitive Neuroscience Lab at UCSD with Dr. Jaime Pineda. View flyer or contact Erin at ehecht@ucsd.edu or 858-534-9754. 

Autism - Adolescent and young adult males; 12 years and up with IQ over 80. Behavioral tasks done during an EEG Recording or a functional MRI scan.
UCSD and SDSU. Contact Dr. Natacha Akshoomoff at 858-622-1805 or natacha@ucsd.edu

Autism Study - UC Irvine, in collaboration with For OC Kids Neurodevelopmental Center, is seeking volunteers to participate in the study of a potential effective treatment for autism using mild forms of sensory stimulation. Eligible subjects must be between 3-6 years of age and have a diagnosis of autism. Benefits may include improvement in the symptoms of autism. Contact Michael Leon, Professor of Neurobiology and Behavior at UC Irvine at 949-824-5343 or mleon@uci.edu

Behavioral/ADHD/Mental Health:

ADHD/ADD Study - Call 619-543-3697 or email adhdstudy@ucsd.edu.
 
The Center for Behavioral Teratology at SDSU is interested in assessing children 5-16 years with a history of prenatal alcohol and/or drug exposure, children with attention deficit hyperactivity disorder (ADHD), behavioral problems, other developmental problems or typically developing children with no exposure. Please call 619.594.1228 or email cbt@mail.sdsu.edu for additional information.
 
ADHD, Anxiety Disorders, Eating Disorders, PTSD, Depression, Bipolar Disorder, Schizophrenia and Schizoaffective Disorder Studies - Participants will
receive study-related medical evaluations and psychological assessments
at no cost. UCSD Psychopharmacology Research Initiatives Center of Excellence. Call 1-866 827-7423 or email PRICE@ucsd.edu

A Research Study at Rady Children's Hospital is seeking English speaking children who are currently receiving outpatient mental health treatment for behavior issues (ages of 4-13). This study is investigating ways to increase parent engagement and involvement with their child's mental health treatment. Parents should contact Rachel Haine-Schlagel, Ph.D. at 858.966.7703 x3583 or rhaine@casrc.org.
 
The American Library Association is conducting a survey about library services, information access, and accessibility for patrons and students with disabilities. Please take the time to participate in this study, as the input could have a major impact on library services for the disabled. https://usccmcis.qualtrics.com/SE/?SID=SV_7TI60Vavg09qHB2. For more information, contact Clayton at (803)-351-8095 or studylibraryaccess@gmail.com.

Seeking Participants for Transition Study - families with sons/daughters 16-25 years of age with autism spectrum disorder (ASD) are needed to participate in an interview on transition. Dr. Kraemer at SDSU is currently interviewing families to find out how youth with ASD have been prepared for the transition from the school system to the adult world, family involvement in that process, and how preparing for transition has affected family life. Interviews take place in the family home (or another location preferred by the family) and last about 1.5 hours. Please contact Dr. Bonnie Kraemer at (619) 594-3492 or bkraemer@mail.sdsu.edu. View Flyer.
Vea el volante.

Developmental Delay:
The first is a longitudinal study following the development of individuals with Fragile X, Turner Syndrome, and Developmental delay.  The second is a treatment study, which uses a computer-based tutoring program to teach math skills.  Thus, we are seeking individuals with these diagnoses between the ages of 9 and 25. http://spnl.stanford.edu/ (650) 724-7395 or khustyi@stanford.edu

The Adult Down syndrome Program at UCSD is conducting a study of the effects of yoga on behavior, anxiety and stress in individuals with Down syndrome.  Seeking participants 18 to 60 years of age with Down syndrome. The yoga program will take place at the ARC of San Diego. Contact 858.246.1300 or CAPmemory@ucsd.edu

Stanford Research Study - seeking individuals between the ages of 15-26 who have developmental delay or learning disability to participate in research studies exploring the complex relationships among brain development, brain function, environmental influences, and behavior. Participation involves a 2-3 day evaluation that may include Cognitive and behavioral evaluation and MRI brain scan. Participants receive free cognitive, behavioral, or neuropsychological assessment, a research report of the assessment results and a $100 honorarium. Travel arrangements will be made by Stanford research staff so there will be no travel or lodging costs to families. Contact Kristin at khustyi@stanford.edu or (650) 724-7395.

Seeking participants in an online study about the social inclusion of children with and without developmental disabilities (DD). The goal is to learn about the factors associated with the social participation and inclusion of preschool and early-school aged children with and without DD and the experience of their families. This information is very important for informing families, community and social services to better meet the needs of all children and their families. Volunteers will be asked to fill out a series of questionnaires via an online survey. They are looking for parents who have a child between the ages of 3 and 8 years, who is typically developing, or who has a developmental disability). For information, contact vicki.lopes@queensu.ca. Follow https://www.surveymonkey.com/s/social_inclusion and use the password “inclusion”.
 

Other:

Patient-Oriented Integrated Neurological Treatment -The University of St. Augustine for Health Science is requesting volunteer participants to work with their students in their Pediatric & Adult Physical Therapy Evaluation and Interventions Course in November.Seeking Children or Adults having difficulty with gross motor skills including gait, balance and mobility.Where: University of St. Augustine for Health Sciences, San Marcos Campus, 700 Windy Point Way, San Marcos, CA, 92069 Building B Rooms: 208, 209, 212.What:   Classes are coordinated and supervised by Physical Therapy Faculty who have expertise in pediatrics. This is Free! PLEASE CONTACT: Anna Edwards, PT, MA, MBA aedwards@usa.edu    760-591-3012 x 2402. 

UCSD Center for Research in Language: Need participants for a NIH funded research study examining the role that memory, attention, and speed of processing has on children's sentence comprehension abilities in children with language learning disabilities. View Details . Contact  Andrea Fung at awfung@ucsd.edu or 619-306-2262.

Cervical Dystonia clinical trial at USC - DR. MARK LEW, INVESTIGATOR. The study title is Open-Label Non-Inferiority Study Evaluating the Efficacy and Safety of Xeomin® in Subjects with Cervical Dystonia. The study will compare receiving injections of Xeomin® in shorter treatment intervals (Short Flex dosing) to the standard interval dosing (long Flex dosing) to determine if the response to treatment is comparable in both how it works and any side-effects. Xeomin® is approved by the FDA for the treatment of Cervical Dystonia (CD). The use of Xeomin® is investigational in regards to shorter treatment intervals. An investigational use is one that is not approved by the FDA. This is an OPEN-LABEL TRIAL meaning that those accepted into the study will receive Xeomin® injection free-of-charge during the course of the study. For more information, please contact Gina Barles, Clinical Project Manager, USC Dept. of Neurology at 323-442-5723.

A Vanderbilt Sibling Study is seeking families with 2 children between the ages of 12 and 18. They are interested in how having a brother or sister impacts adolescents. Parents and siblings are invited to fill out an online survey. Families with and without children with disabilities are welcome to participate. Participants will be entered in a drawing for one of 40 $50 Target gift cards (one per family). Survey Link:. Contact Carolyn Shivers, MS at 330-704-6291 or carolyn.m.shivers@vanderbilt.edu

Anti-Bullying Awareness - Help raise awareness of the problem of bullying of students with disabilities. Please consider submitting music and art articles relating to the topic. Some possible ideas are: An article on a time you were bullied; A hip hop track about the subject; Video clips talking about how bullying affects the community, or even disability rights movement in general, etc. Submissions must be received by March 15, 2011 for consideration to be posted online. If your piece is posted, you will be acknowledged. Contact Jacob at Jlesner@aol.com

Medication management by school personnel - For the last couple of years, the American Diabetes Association has sponsored legislation to allow non-medically trained school personnel to help students administer their daily insulin. Since most schools no longer have nurses on site, parents have to leave work and come to the school several times a day to help monitor their child’s insulin.  The School nurses association has opposed this effort because they say non-medically trained school employees are not qualified to help students with their insulin and this could result in adverse events. This year, the sponsors are thinking of broadening the bill to include other conditions in addition to diabetes.  Do you know of other chronic childhood conditions where having school personnel help manage medication or equipment during the day would be needed? Please send your input to Erin Givans at erin@childrens-coalition.org

Healthy Lifestyles Online Survey - The Graduate School of Public Health at San Diego State is in the process of developing programs involving health promotion and healthy lifestyle for individuals with special needs. To develop these programs, they are seeking feedback from parents/caregivers of individuals with special needs about demographics, existing dietary practices, physical activity, challenges in pursuing healthy eating and fitness, involvement of medical professionals in healthy lifestyle, and suggestions on the best way to deliver these health training programs to you. Their goal is to establish a brief health education service for all individuals with special need, and contribute nation-wide to the prevention of obesity and promotion of fitness for this frequently neglected population. Please complete the online survey at http://www.surveymonkey.com/s/SanDiegoStateUniversityFamilySurvey. All information received will remain confidential. Participants will have the opportunity to enter into a raffle of $50.

In-home supports Survey - The Beach Center on Disability is seeking parents of children 3-5 years with disabilities to participate in a survey on how children calm themselves (self-regulation), make choices and express their choices, and engage in activities with necessary help, to lay the foundations for later self-determination. They also want to know about your preferences about how best to work in partnership with teachers or therapists who help your child at school or therapy locations. The survey takes approximately 15 minutes to finish. Participants will receive several children’s books (if you provide an address for mailing). Participation is confidential.  Survey - http://www.surveymonkey.com/s/B8WD8FB. (If using a Mac computer, cut & paste the URL above).  Questions: contact Susan Palmer at The Beach Center, University of Kansas at spalmer@ku.edu or 785-864-0270.   

A research project funded by the National Institutes of Health is seeking parents who have at least one child with special needs (under age 21). They are conducting this survey to better understand the work – tasks and activities - that parents of children with special needs do.  The information will help increase the visibility of this work, help others recognize its value, and enable us to advocate effectively for increased supports for families of children with special needs. Contact Lisa Jennings at lisamjenn@aol.com.  View survey at https://www.surveymonkey.com/specialneedschild

Fatherhood Study - will focus mainly on the positive consequences of having a child with disabilities on the part of the fathers. View Details.
 
Salk Institute for Biological Studies - Brain Study for Individuals (12 years or older) with developmental delays. Spend a day at the Salk Institute and play game like activites & computerized games. Call 800-434-1038.

Spina Bifida Study by Children's Hospital of Los Angeles - youth ages 14 to 18 needed to complete a questionnaire. Contact cbetz@chla.usc.edu

Speech Study – Children 3 - 6.5 years who speak English. Contact Alycia Cummings, Ph.D. at 858.245.7222 or acummings@crl.ucsd.edu.

Tourette Syndrome Study - Children ages 9-17. Call Michelle at UCLA at 310-825-0122 or visit www.tsa-usa.org.

Child & Adolescent Migraine Study - 6-17 years, will receive compensation, study-related medication & medical care. Imperial County. Call 760-355-0176 or email svrcresearch@gmail.com.


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